medical referrals
These conditions are eligible for a wish:
- Complex congenital heart diseases that meet one of the following (aortic atresia, double inlet left ventricle, hypoplastic left heart syndrome, mitral atresia, single ventricle, tricuspid atresia)
- congenital heart disease requiring a Fontan procedure
- congestive heart failure
- frequent unplanned hospitalizations after repair of a congenital heart defect (routine studies requiring hospitalization are not included)
- history of heart transplant or actively listed for heart transplant
- history of heart-lung transplant or actively listed for heart-lung transplant
- hypertrophic, restrictive and/or arrhythmogenic cardiomyopathy
- implanted cardiac defibrillator
- implanted ventricular assist device
- left ventricular heart failure
- long QT syndrome
- pulmonary hypertension, active on treatment
- tetralogy of fallot with pulmonary atresia and major aortopulmonary collaterals
These conditions are not eligible for a wish:
- Chronic diseases that do not lead to a limitation of life expectancy are not eligible
Qualifying endocrinology conditions:
- history of pancreas transplant or actively listed for pancreas transplant
- hyperinsulinism with persistent hypoglycemia after pancreatectomy
- multiple endocrine neoplasia syndromes with evidence of cancer
- panhypopituirarism requiring hormone replacement with hyrdocortisone and/or desmopressin
- thyroid cancer requiring and referred within one year of completing chemotherapy treatments and/or radiation treatments (excluding radioactive iodine treatment)
- X-linked adrenoleukodystrophy with adrenal or brain findings