I wish to give back to the pediatric oncology unit

Gauri

18

leukemia

Gauri with her Kaiser medical team

From patient to philanthropist

by Kali Sherman

By the age of 7, Gauri already had lofty aspirations for her future. “I’m going to cure cancer one day,” she’d repeatedly tell her family.

“I wanted to become a doctor and cure cancer,” Gauri recalls. “That was just my thing. It was always in the back of my mind. I just thought it was so cool.”

Gauri didn’t know then that, at age 10, she would have first-hand experience with cancer from the patient side. But, after waking up with swollen eyelids and several doctor’s visits, Gauri received a leukemia diagnosis. She started treatment immediately and underwent six rounds of extensive chemotherapy. After each session, she spent 40 days in the hospital with a one-week break between.

Although treatment worked, the risk of cancer recurrence prompted Gauri and her parents, Jayasree and Jay, to opt for her to receive a bone marrow transplant. The transplant was accompanied by another round of more aggressive chemotherapy with 6 months of hospitalization.

The biggest thing that frightened me was not knowing what was going to happen to me.

Gauri

wish kid

"The biggest thing that frightened me was not knowing what was going to happen to me," says Gauri of that experience. "My medical team really helped me. They were so sweet, and because of them, the process was definitely smoother than you'd expect."

Gauri experienced waves of negative side effects from the chemotherapy. Ulcers developed in her mouth and throat, making it extremely painful to swallow, forcing her to eat from a feeding tube. Additionally, she faced challenges such as nausea and graft-versus-host disease post-bone marrow transplant. Fortunately, her body accepted the transplant after a few weeks, and she began the slow process of recovery. 

Gauri during treatment

Thirteen-year-old Gauri during her chemotherapy treatment

After two strenuous years of treatment, at age 13, Gauri was cancer-free and was able to go back to her life and return to school.

Shortly after, Gauri learned from her care team that she qualified for a wish. Then, the COVID-19 pandemic hit, which meant most wish options were put on hold. This gave Gauri the opportunity to thoroughly explore what she wanted to wish for. Reflecting on her treatment experience, Gauri thought about how she found the strength to get through it.

"The doctors, nurses, and the childcare specialist would help explain everything to me before it happened with every procedure,” she says. “It helped me not be scared."

Gauri decided to use her wish to help provide that same sense of awareness and security for other children battling cancer. She wished to give back to her pediatric oncology unit at Kaiser Permanente Santa Clara.

Gauri worked with her volunteer wish granters; wish planner Ana Maria Vallarino, and Kaiser Permanente Child Life Specialist Wendy Celaya to determine options. After months of brainstorming over Zoom calls, Gauri felt confident in the scope and impact of her wish.

Gauri chose to provide the oncology unit with educational toys and children's books to teach their pediatric cancer patients about their illnesses.

I wanted to help minimize that fear for other kids going through similar situations.

Gauri

wish kid

“I wanted to help minimize that fear for other kids going through similar situations,” says Gauri. “I think being able to learn ahead of time through something they can understand, like educational play, can help them feel a little bit less stressed like it did for me.”

Gauri and the Kaiser team selected children's books about cancer and toys resembling medical devices, such as miniature IV poles and toy ports. They also included doodle pads and tablets to provide the children with a creative outlet and distraction.

"We help our pediatric patients prepare for a procedure," says Celaya. "These children are going through medical procedures, and we are here to help explain in a way that they can understand and help them cope. We honestly couldn't do our jobs without these items Gauri provided us, and we are so thankful."

We honestly couldn't do our jobs without these items Gauri provided us, and we are so thankful.

Wendy Celaya

Child Life Specialist

Gauri holding the cancer bell

Gauri revealing the engraved cancer bell to the medical team at her wish celebration.

Gauri’s final gift was a very special item—a cancer bell for each child to ring upon completing their treatment. It was engraved with an inspirational message from Gauri: "Cancer is in the past, and now you're the future. Gauri's Wish 2023.” The first 125 children to ring the bell would also receive a $25 gift card when leaving the hospital, to help celebrate the start of their cancer-free lives.

After many months of planning and effort, Gauri’s wish culminated in a heartwarming celebration and reunion. On September 18, 2023, Gauri, her parents, Make-A-Wish staff and volunteers, and the her oncology pediatric team gathered to unveil the wish items at the same Kaiser Permanente Medical Center in Santa Clara where Gauri received her treatment for leukemia. The celebration was the first time she’d seen her medical team since eight years prior.

Dr. Mathew Gorman, pediatric oncologist at Kaiser and Gauri's doctor during her treatment, shared at the event: "It's always a privilege getting to know our patients very well, and especially so when we see them years later. I'm really happy to see Gauri and her family are doing great."

As the team and Gauri reflected on the past, recalling memories of her treatment, Gauri enthusiastically shared with them news about her future. She is now in her first year at the University of California, Davis, majoring in cell biology, with the aspiration of becoming an oncologist.

Gauri’s experience battling cancer, along with the support of the medical team, inspired her to pursue seriously the dreams she had at age 7.

"When I was younger, I wanted to cure cancer, but I didn't think it was realistic,” says Gauri, "and then I got cancer, and I realized this isn't some far-fetched idea. This is something that's present in so many people's lives.” 

Beyond the donated books and toys, Gauri wants her story to inspire hope for other cancer patients and their family members. She recalls that, while she was undergoing treatment, her doctor told her mom that his wife had battled and survived leukemia and that Gauri would, too.
 
"I'm hoping that through my wish, people can be aware that I survived, I'm going to college, and I'm doing well,” says Gauri, "I hope my story can inspire strength for others like it did for my mom.”

You can give the gift of hope, just like Guari did!