I wish to have a train room

Jackson

13

nervous system disorder

Jackson - I wish to have a train room

All Aboard!

Jackson has always loved trains.

Not just the way they glide along the tracks, but the sound of the whistle, the steady rhythm of the wheels, and the promise that every train is headed somewhere exciting. To Jackson, trains represent adventure, possibility, and a world far bigger than hospital rooms and doctors’ appointments.

Jackson lives with a rare genetic disorder that affects nearly every part of his daily life. From a young age, his days have been filled with extensive treatments and therapies. During his stem cell transplants in Pittsburgh, Jackson and his dad would use their day passes to escape the hospital and wander the city together searching for trains. One favorite discovery was affectionately nicknamed the “old junk train,” tucked away inside a car junkyard—an unexpected treasure during a difficult time.

So, when Jackson had the opportunity to have a wish granted, the answer was easy. He wished for a train room—not just a few decorations, but a space that felt like stepping into his favorite place every single day.

When the doors to Jackson’s train room opened on wish day, his eyes widened and his smile said everything. Trains of every color filled the room, but this wasn’t just trains on a track—it was an entire world. Every corner told a story of journeys, destinations, and dreams in motion. For the first time, Jackson had a space that was entirely his: a place to rest, imagine new adventures, and simply be a kid—not a patient.

His family watched as he took it all in, smiling in a way they hadn’t seen in a long time. The room didn’t change Jackson’s medical journey, but it changed how he experienced it. It gave him comfort, confidence, and a reminder that even on the hardest days, something beautiful is waiting just ahead.